Craniosynostosis?

Craniosynostosis (cra·nio·syn·os·to·sis | ˌkrā-nē-ō-ˌsi-ˌnä-ˈstō-səs) is a condition in which one or more of the sutures in an infant’s skull close too early. These sutures are meant to remain open during early childhood to allow the brain and skull to grow together. When they close prematurely, it can affect head shape, facial symmetry, and—in some cases—increase pressure inside the skull.

My daughter was born with bi-coronal craniosynostosis, meaning the sutures above her eyes were fused at birth. Under typical circumstances, those sutures don’t fully close until much later in life—often decades later. Their early closure made things more complicated from the very beginning.

She has undergone seven surgeries on her skull so far, with more likely ahead. None of this has been easy. And yet, like so many cranio kids, she is remarkably strong—resilient in ways that continue to humble me. She is full of love, determination, humor, and grit. I am endlessly proud to be her dad. She makes me better in ways I didn’t know I needed.

This journey is also where CranioDad comes from.

When we started walking this path, I noticed there wasn’t much out there from a father’s perspective—especially one willing to speak openly, imperfectly, and honestly about it. I didn’t set out to be an expert. I just wanted other parents, especially dads, to know they weren’t alone. To see a face. To hear a voice. To recognize themselves in the questions, the fear, and the quiet hope.

That’s what this space is meant to be.
Not a manual. Not a diagnosis. Not medical advice.
Just a human story, shared.